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aHUS Action is a coalition campaigning for better NHS care for patients with atypical haemolytic uremic syndrome (ahus) in England.
We are calling for a national specialised service for the diagnosis and treatment for aHUS, and to ensure that new therapies are available to all patients who need them.
> Contact aHUS Action

WHAT IS aHUS?

aHUS is a very rare disease that causes irreversible kidney failure in children and adults for which there is no cure and no effective treatment until recently.

OUR CAMPAIGNS

We are a campaigning organisation promoting a wider understanding and availability of treatments for aHUS.

HELP AND ADVICE

If you need more information on aHUS or support as a patient or parent, we can point you in the right direction.