Rare diseases discussed in Parliament
15 Jan 2016
In Parliament last week David Hanson, a Labour MP, said there needed to be more support for patients when they are diagnosed with a rare disease, and for parents when their child receives a diagnosis.
NHS England announces budget increase for specialised services
21 Dec 2015
The specialised services budget will grow from £14.6bn in 2015/16 to £15.7bn in 2016/17, reaching £18.8bn by 2020/21.
NHS England & NICE publish proposals for new Cancer Drugs Fund
7 Dec 2015
The CDF has been subject to widespread criticism after it funds medicines that were previously not recommend by NICE.
NHS England to establish national service for aHUS
5 Nov 2015
The primary aim of the service will be to ensure that patients receive a confirmed diagnosis as quickly as possible so that they can commence treatment with Eculizumab.
Accelerated Access Review initial report published
1 Nov 2015
The Accelerated Access Review (AAR) has published its initial report into policy mechanisms by which access to innovative medicines can made available more quickly to […]