Recent News and Views

Sir Nick Harvey MP and Keith Vaz MP  have submitted petitions calling for access to Eculizumab to the House of Commons. These two petitions have a total of 30,000 signatures.

Madeleine Moon MP has spoken extensively about the need for Eculizumab during a debate on the Queen’s Speech in the House of Commons. 

A Sunday Times article has drawn attention to the lack of funding for Eculizumab for aHUS patients. 

NHS England has announced the development of a new policy on funding Eculizumab following three months of campaigning led by aHUS Action and aHUSUK.